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Eden Raises £100 for Joel with SMA Type 1

Every month, Eden hosts a dress-down day that allows employees to come into work dressed how they please for £2 (or more should they wish to contribute). 100% of the money raised from these dress-down days is donated to various charities.

This month, Eden decided to give the money to former employee Nicola Mendrek (second from the left), to help her little boy Joel who has been diagnosed with SMA Type 1. SMA (spinal muscular atrophy) is a disease that causes deterioration of the nerve cells (motor neurons) that connect the brain and spinal cord to the muscles. As the link between the nerves and muscles breaks down, the muscles used for activities such as breathing, swallowing, crawling, walking, sitting up and moving the head become progressively weaker and shrink (atrophy).

We hope that this money helps Joel become as comfortable as possible and we wish him and his family the very best.

There is currently a petition to make Nusinersen available to terminally ill children with Spinal Muscular Atrophy (SMA). Show your support by signing the petition to get enough signatures to receive a government response. There is also a Facebook page set up for Joel's SMA Support if you'd like to keep up-to-date on their page.

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